

What a journey! Kai's tonsils were first enlarged at the end of September at the tail end of the croup. We tried and tried all the alternative avenues to bring them down without luck. In fact, we rushed him to the ER for steroids three times in October and then had him on low dose steroids for a month - all the while watching them get bigger. In general, he was fine during the day, but night was horrible. He would sometimes go 10 seconds between breaths and even then his chest caved in dramatically to take that breath. He was exhausted during the day and had circles under his sweet little eyes. His tonsils were touching in the back of his throat although he could eat anything we gave him. These days they don't do tonsillectomies unless tonsils have stayed enlarged for 6 weeks without responding to steroids and antibiotics and then there's a 6 week wait to get scheduled. So by the end, I was actually begging to get in asap on the schedule. It's hard to watch your kid suffer.
Finally, we got them out on December 6 and spent 36 hours in the hospital. Dad and Val came out to help with the girls and his recovery was intense but at the two week mark he was finally feeling relief. Since then, he has put on all the weight he lost, really come back to his usual "happiest kid I know" mode.
All this is to explain why I stopped posting on this blog for so long! We moved his bed next to ours and I was up much of the night to take care / worry / comfort him through the night. Just now I realize how much stress I was under. They ran tests to rule out lymphoma and just the mention of that was enough to stress me out.
Spending a night at Children's is an excellent reminder of how lucky we all are. There were kids recovering there with major issues, have had mulitple surgeries, and life threatening illnesses. This is tonsils, we are lucky to have access to medical care, and now we are fine!